@article{1bfc085ce6534555950e37febc610461,
title = "Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations",
abstract = "Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but also to the participant's family. Yet investigators lack guidance on return of results to relatives, including after the participant's death. In this paper, a national working group offers consensus analysis and recommendations, including an ethical framework to guide investigators in managing this challenging issue, before and after the participant's death.",
author = "Wolf, {Susan M.} and Rebecca Branum and Koenig, {Barbara A.} and Petersen, {Gloria M.} and Berry, {Susan A.} and Beskow, {Laura M.} and Daly, {Mary B.} and Fernandez, {Conrad V.} and Green, {Robert C.} and Leroy, {Bonnie S.} and Lindor, {Noralane M.} and O'Rourke, {P. Pearl} and Breitkopf, {Carmen Radecki} and Rothstein, {Mark A.} and {Van Ness}, Brian and Wilfond, {Benjamin S.}",
note = "Publisher Copyright: {\textcopyright} 2015 American Society of Law, Medicine & Ethics, Inc.",
year = "2015",
month = sep,
day = "1",
doi = "10.1111/jlme.12288",
language = "English",
volume = "43",
pages = "440--463",
journal = "Journal of Law, Medicine and Ethics",
issn = "1073-1105",
publisher = "SAGE Publications Inc.",
number = "3",
}