National survey of patient perspectives on cost discussions among recipients of copay assistance.

Anh B. Lam, Ryan D. Nipp, Jill S. Hasler, Bonie Y. Hu, Greg J. Zahner, Sarina Robbins, Stephanie B. Wheeler, Erin K. Tagai, Suzanne M. Miller, Jeffrey M. Peppercorn

Research output: Contribution to journalArticlepeer-review

Abstract

BackgroundIndividuals with cancer and other medical conditions often experience financial concerns from high costs-of-care and may utilize copay assistance programs (CAP). We sought to describe CAP recipients' experiences/preferences for cost discussions with clinicians.MethodsWe conducted a national, cross-sectional electronic-survey from 10/2022 to 11/2022 of CAP recipients with cancer or autoimmune conditions to assess patient perspectives on cost discussions. We used multivariable logistic regression models to explore associations of patient perspectives on cost discussions with patient characteristics and patient-reported outcomes (eg, financial toxicity, depression/anxiety, and health literacy).ResultsAmong 1,566 participants, 71% had cancer and 29% had autoimmune conditions. Although 62% of respondents desired cost discussions, only 32% reported discussions took place. Additionally, 52% of respondents wanted their doctor to consider out-of-pocket costs when deciding the best treatment, and 61% of respondents felt doctors should ensure patients can afford treatment prescribed. Participants with depression symptoms were more likely to want doctors to consider out-of-pocket costs (OR = 1.54, P = .005) and to believe doctors should ensure patients can afford treatment (OR = 1.60, P = .005). Those with severe financial toxicity were more likely to desire cost discussions (OR = 1.65, P ConclusionsIn this large sample of CAP recipients with cancer and autoimmune conditions, most reported a desire for cost discussions, but under one-third reported such discussions took place.
Original languageEnglish
Pages (from-to)e1540-e1551
JournalThe oncologist
Volume29
Issue number11
Early online dateMay 12 2024
DOIs
StatePublished - Oct 4 2024

Keywords

  • Adult
  • Aged
  • Cross-Sectional Studies
  • Female
  • Health Expenditures/statistics & numerical data
  • Humans
  • Male
  • Middle Aged
  • Neoplasms/economics
  • Surveys and Questionnaires

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