Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer

Lisa A. Schwartz; Alexandra M. Psihogios; Dare Henry-Moss; Lauren C. Daniel; Elizabeth S. Ver Hoeve; Blanca Velazquez-Martin; Eliana Butler; Wendy L. Hobbie; Natasha Buchanan Lunsford; Susan A. Sabatino; Lamia P. Barakat; Jill P. Ginsberg; Linda Fleisher; Janet A. Deatrick; Linda A. Jacobs; Bridget O'Hagan; Lindsay Anderson; Emily Fredericks; Sandra Amaral; Nadia Dowshen; Keisha Houston; Carolyn Vachani; Margaret K. Hampshire; James M. Metz; Christine E. Hill-Kayser; Dava Szalda

doi:10.1037/cpp0000272

Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer

Lisa A. Schwartz, Alexandra M. Psihogios, Dare Henry-Moss, Lauren C. Daniel, Elizabeth S. Ver Hoeve, Blanca Velazquez-Martin, Eliana Butler, Wendy L. Hobbie, Natasha Buchanan Lunsford, Susan A. Sabatino, Lamia P. Barakat, Jill P. Ginsberg, Linda Fleisher, Janet A. Deatrick, Linda A. Jacobs, Bridget O'Hagan, Lindsay Anderson, Emily Fredericks, Sandra Amaral, Nadia DowshenKeisha Houston, Carolyn Vachani, Margaret K. Hampshire, James M. Metz, Christine E. Hill-Kayser, Dava Szalda

Research output: Contribution to journal › Article › peer-review

18 Scopus citations

Abstract

Objective: Methods for developing mobile health (mHealth) interventions are not well described. To guide the development of future mHealth interventions, we describe the application of the agile science framework to iteratively develop an mHealth interven-tion for adolescent and young adult (AYA) survivors of childhood cancer. Method: We created the AYA STEPS mobile app (AYA Self-management via Texting, Education, and Plans for Survivorship) by modifying and integrating 2 existing programs: an online survivorship care plan (SCP) generator and a text messaging self-management intervention for AYA off treatment. The iterative development process involved 3 stages of agile science: (1) formative work, (2) obtaining feedback about the first AYA STEPS prototype, and (3) pilot testing and finalization of a prototype. We determined preferences of AYA stakeholders as well as discovered and addressed technology problems prior to beginning a subsequent randomized controlled trial. Results: AYA survivors reported that the app and the embedded tailored messages related to their health and SCP were easy to use and generally satisfying and beneficial. Usage data supported that AYA were engaged in the app. Technology glitches were discovered in the pilot and addressed. Conclusion: The iterative development of AYA STEPS was essential for creating a consistent and acceptable end user experience. This study serves as one example of how behavioral scientists may apply agile science to their own mHealth research.

Original language	English
Pages (from-to)	31-43
Number of pages	13
Journal	Clinical Practice in Pediatric Psychology
Volume	7
Issue number	1
DOIs	https://doi.org/10.1037/cpp0000272
State	Published - Mar 2019

Keywords

Adolescents/young adults
Cancer
Self-management
mHealth

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1037/cpp0000272

Cite this

Schwartz, L. A., Psihogios, A. M., Henry-Moss, D., Daniel, L. C., Ver Hoeve, E. S., Velazquez-Martin, B., Butler, E., Hobbie, W. L., Lunsford, N. B., Sabatino, S. A., Barakat, L. P., Ginsberg, J. P., Fleisher, L., Deatrick, J. A., Jacobs, L. A., O'Hagan, B., Anderson, L., Fredericks, E., Amaral, S., ... Szalda, D. (2019). Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer. Clinical Practice in Pediatric Psychology, 7(1), 31-43. https://doi.org/10.1037/cpp0000272

@article{f37750c5e0774e14a5e58f7ce47d1b02,

title = "Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer",

abstract = "Objective: Methods for developing mobile health (mHealth) interventions are not well described. To guide the development of future mHealth interventions, we describe the application of the agile science framework to iteratively develop an mHealth interven-tion for adolescent and young adult (AYA) survivors of childhood cancer. Method: We created the AYA STEPS mobile app (AYA Self-management via Texting, Education, and Plans for Survivorship) by modifying and integrating 2 existing programs: an online survivorship care plan (SCP) generator and a text messaging self-management intervention for AYA off treatment. The iterative development process involved 3 stages of agile science: (1) formative work, (2) obtaining feedback about the first AYA STEPS prototype, and (3) pilot testing and finalization of a prototype. We determined preferences of AYA stakeholders as well as discovered and addressed technology problems prior to beginning a subsequent randomized controlled trial. Results: AYA survivors reported that the app and the embedded tailored messages related to their health and SCP were easy to use and generally satisfying and beneficial. Usage data supported that AYA were engaged in the app. Technology glitches were discovered in the pilot and addressed. Conclusion: The iterative development of AYA STEPS was essential for creating a consistent and acceptable end user experience. This study serves as one example of how behavioral scientists may apply agile science to their own mHealth research.",

keywords = "Adolescents/young adults, Cancer, Self-management, mHealth",

author = "Schwartz, {Lisa A.} and Psihogios, {Alexandra M.} and Dare Henry-Moss and Daniel, {Lauren C.} and {Ver Hoeve}, {Elizabeth S.} and Blanca Velazquez-Martin and Eliana Butler and Hobbie, {Wendy L.} and Lunsford, {Natasha Buchanan} and Sabatino, {Susan A.} and Barakat, {Lamia P.} and Ginsberg, {Jill P.} and Linda Fleisher and Deatrick, {Janet A.} and Jacobs, {Linda A.} and Bridget O'Hagan and Lindsay Anderson and Emily Fredericks and Sandra Amaral and Nadia Dowshen and Keisha Houston and Carolyn Vachani and Hampshire, {Margaret K.} and Metz, {James M.} and Hill-Kayser, {Christine E.} and Dava Szalda",

note = "Publisher Copyright: {\textcopyright} 2019 American Psychological Association.",

year = "2019",

month = mar,

doi = "10.1037/cpp0000272",

language = "English",

volume = "7",

pages = "31--43",

journal = "Clinical Practice in Pediatric Psychology",

issn = "2169-4826",

publisher = "American Psychological Association",

number = "1",

}

Schwartz, LA, Psihogios, AM, Henry-Moss, D, Daniel, LC, Ver Hoeve, ES, Velazquez-Martin, B, Butler, E, Hobbie, WL, Lunsford, NB, Sabatino, SA, Barakat, LP, Ginsberg, JP, Fleisher, L, Deatrick, JA, Jacobs, LA, O'Hagan, B, Anderson, L, Fredericks, E, Amaral, S, Dowshen, N, Houston, K, Vachani, C, Hampshire, MK, Metz, JM, Hill-Kayser, CE & Szalda, D 2019, 'Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer', Clinical Practice in Pediatric Psychology, vol. 7, no. 1, pp. 31-43. https://doi.org/10.1037/cpp0000272

TY - JOUR

T1 - Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer

AU - Schwartz, Lisa A.

AU - Psihogios, Alexandra M.

AU - Henry-Moss, Dare

AU - Daniel, Lauren C.

AU - Ver Hoeve, Elizabeth S.

AU - Velazquez-Martin, Blanca

AU - Butler, Eliana

AU - Hobbie, Wendy L.

AU - Lunsford, Natasha Buchanan

AU - Sabatino, Susan A.

AU - Barakat, Lamia P.

AU - Ginsberg, Jill P.

AU - Fleisher, Linda

AU - Deatrick, Janet A.

AU - Jacobs, Linda A.

AU - O'Hagan, Bridget

AU - Anderson, Lindsay

AU - Fredericks, Emily

AU - Amaral, Sandra

AU - Dowshen, Nadia

AU - Houston, Keisha

AU - Vachani, Carolyn

AU - Hampshire, Margaret K.

AU - Metz, James M.

AU - Hill-Kayser, Christine E.

AU - Szalda, Dava

PY - 2019/3

Y1 - 2019/3

N2 - Objective: Methods for developing mobile health (mHealth) interventions are not well described. To guide the development of future mHealth interventions, we describe the application of the agile science framework to iteratively develop an mHealth interven-tion for adolescent and young adult (AYA) survivors of childhood cancer. Method: We created the AYA STEPS mobile app (AYA Self-management via Texting, Education, and Plans for Survivorship) by modifying and integrating 2 existing programs: an online survivorship care plan (SCP) generator and a text messaging self-management intervention for AYA off treatment. The iterative development process involved 3 stages of agile science: (1) formative work, (2) obtaining feedback about the first AYA STEPS prototype, and (3) pilot testing and finalization of a prototype. We determined preferences of AYA stakeholders as well as discovered and addressed technology problems prior to beginning a subsequent randomized controlled trial. Results: AYA survivors reported that the app and the embedded tailored messages related to their health and SCP were easy to use and generally satisfying and beneficial. Usage data supported that AYA were engaged in the app. Technology glitches were discovered in the pilot and addressed. Conclusion: The iterative development of AYA STEPS was essential for creating a consistent and acceptable end user experience. This study serves as one example of how behavioral scientists may apply agile science to their own mHealth research.

AB - Objective: Methods for developing mobile health (mHealth) interventions are not well described. To guide the development of future mHealth interventions, we describe the application of the agile science framework to iteratively develop an mHealth interven-tion for adolescent and young adult (AYA) survivors of childhood cancer. Method: We created the AYA STEPS mobile app (AYA Self-management via Texting, Education, and Plans for Survivorship) by modifying and integrating 2 existing programs: an online survivorship care plan (SCP) generator and a text messaging self-management intervention for AYA off treatment. The iterative development process involved 3 stages of agile science: (1) formative work, (2) obtaining feedback about the first AYA STEPS prototype, and (3) pilot testing and finalization of a prototype. We determined preferences of AYA stakeholders as well as discovered and addressed technology problems prior to beginning a subsequent randomized controlled trial. Results: AYA survivors reported that the app and the embedded tailored messages related to their health and SCP were easy to use and generally satisfying and beneficial. Usage data supported that AYA were engaged in the app. Technology glitches were discovered in the pilot and addressed. Conclusion: The iterative development of AYA STEPS was essential for creating a consistent and acceptable end user experience. This study serves as one example of how behavioral scientists may apply agile science to their own mHealth research.

KW - Adolescents/young adults

KW - Cancer

KW - Self-management

KW - mHealth

UR - http://www.scopus.com/inward/record.url?scp=85062795369&partnerID=8YFLogxK

UR - https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=purepublist2023&SrcAuth=WosAPI&KeyUT=WOS:000648728100004&DestLinkType=FullRecord&DestApp=WOS

U2 - 10.1037/cpp0000272

DO - 10.1037/cpp0000272

M3 - Article

SN - 2169-4826

VL - 7

SP - 31

EP - 43

JO - Clinical Practice in Pediatric Psychology

JF - Clinical Practice in Pediatric Psychology

IS - 1

ER -

Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer

Abstract

Keywords

UN SDGs

Access to Document

Other files and links

Fingerprint

Cite this