Digital literacy linked to engagement and psychological benefits among breast cancer survivors in Internet-based peer support groups

Stephen J. Lepore, Maria A. Rincon, Joanne S. Buzaglo, Mitch Golant, Morton A. Lieberman, Sarah Bauerle Bass, Suzanne Chambers

Research output: Contribution to journalArticlepeer-review

20 Scopus citations

Abstract

Objective: Internet-based peer support groups (ISGs) represent an innovative, scalable approach to addressing information and support needs of cancer survivors. However, this innovation may not benefit survivors equally due to population variance in digital literacy. This study examined how digital literacy influences level of engagement in and psychological benefits from participating in ISGs for breast cancer (N = 183). Methods: Secondary analysis of data from a randomised trial of ISGs that included behavioural measures of engagement, subjective ratings and psychological distress symptoms. Results: Digital literacy was positively related to education level (p =.005). Relative to women with high digital literacy, those with lower digital literacy were more likely to report difficulties using the ISG and to value the user's guide and facilitator assistance (all p's <.05). Digital literacy was negatively correlated with computer anxiety pre-intervention, distress before and after online chat during the intervention and post-intervention depressive symptoms (all p's <.05). Conclusion: Low digital literacy is associated with computer anxiety and barriers to ISG use, as well as distress during and after ISG use. Digital literacy must be taken into account when designing or delivering innovative digital interventions for cancer survivors.

Original languageEnglish
Article numbere13134
Pages (from-to)e13134
JournalEuropean Journal of Cancer Care
Volume28
Issue number4
DOIs
StatePublished - Jul 2019

Keywords

  • Adult
  • Aged
  • Attitude to Computers
  • Breast Neoplasms/psychology
  • Cancer Survivors/psychology
  • Computer Literacy
  • Consumer Health Information
  • Educational Status
  • Female
  • Health Literacy
  • Humans
  • Internet
  • Middle Aged
  • Peer Group
  • Stress, Psychological/etiology

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