Assessment of services to American Indians with disabilities

One hundred and thirty-six directors or coordinators of agencies, providing services to persons with disabilities in the 15 states with the highest percentage of American Indian populations, completed a survey to examine the provision of health-related services to American Indians with disabilities. Directors and coordinators of agencies and programs associated with the Indian Health Service, the Bureau of Indian Affairs, the Developmental Disability Networks, Vocational Rehabilitation, and American Indian Head Start participated in the study. Results indicate limited use by American Indians with disabilities of services and programs provided by these agencies. Furthermore, some health-related services were provided infrequently by these agencies including those identified by the disability community as contributing most often to life quality for persons with disabilities (i.e., assistive technology, rehabilitation/habilitation, and independent living services, such as personal assistance). Service providers identified numerous barriers they encounter in providing services, including policy and administrative issues, lack of resources and service availability, lack of community awareness and involvement, and culturally sensitive service provision. Findings suggest the need for expanding home-based services, community awareness programs, local outreach efforts, and professional staff development.