TY - JOUR
T1 - A discrete choice experiment of preferences for genetic counselling among Jewish women seeking cancer genetics services
AU - Peacock, S.
AU - Apicella, C.
AU - Andrews, L.
AU - Tucker, K.
AU - Bankier, A.
AU - Daly, M. B.
AU - Hopper, J. L.
PY - 2006/11/20
Y1 - 2006/11/20
N2 - To determine which aspects of breast cancer genetic counselling are important to Ashkenazi Jewish women, a discrete choice experiment was conducted. Participants consisted of 339 Australian Ashkenazi Jewish women who provided a blood sample for research used to test for Ashkenazi Jewish ancestral mutations in the genes BRCA1 and BRCA2, and were offered their genetic test result through a cancer genetics service. Main outcome measures were women's preferences for, and trade-offs between, the genetic counselling aspects of providing cancer, gene, and risk information (information); giving advice about cancer surveillance (surveillance); preparing for genetic testing (preparation); and, assistance with decision-making (direction). Respondents most valued information, about twice as much as advice about surveillance, four times as much as preparation for testing, and nine times as much as assistance with decision-making, which was least valued. Women's preferences were consistent with the major goals of genetic counselling, which include providing information and surveillance advice, and avoiding direction by facilitating autonomous decision-making. There were differences between the women in which aspects they most favoured, suggesting that counselling that elicits and responds to clients' preferences is more likely to meet clients' needs.
AB - To determine which aspects of breast cancer genetic counselling are important to Ashkenazi Jewish women, a discrete choice experiment was conducted. Participants consisted of 339 Australian Ashkenazi Jewish women who provided a blood sample for research used to test for Ashkenazi Jewish ancestral mutations in the genes BRCA1 and BRCA2, and were offered their genetic test result through a cancer genetics service. Main outcome measures were women's preferences for, and trade-offs between, the genetic counselling aspects of providing cancer, gene, and risk information (information); giving advice about cancer surveillance (surveillance); preparing for genetic testing (preparation); and, assistance with decision-making (direction). Respondents most valued information, about twice as much as advice about surveillance, four times as much as preparation for testing, and nine times as much as assistance with decision-making, which was least valued. Women's preferences were consistent with the major goals of genetic counselling, which include providing information and surveillance advice, and avoiding direction by facilitating autonomous decision-making. There were differences between the women in which aspects they most favoured, suggesting that counselling that elicits and responds to clients' preferences is more likely to meet clients' needs.
KW - Ashkenazi
KW - BRCA1 and BRCA2
KW - Breast cancer
KW - Client preferences
KW - Discrete choice experiment
KW - Genetic counselling
UR - http://www.scopus.com/inward/record.url?scp=33751026374&partnerID=8YFLogxK
UR - https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=purepublist2023&SrcAuth=WosAPI&KeyUT=WOS:000242046700023&DestLinkType=FullRecord&DestApp=WOS
U2 - 10.1038/sj.bjc.6603451
DO - 10.1038/sj.bjc.6603451
M3 - Article
C2 - 17102813
SN - 0007-0920
VL - 95
SP - 1448
EP - 1453
JO - British Journal of Cancer
JF - British Journal of Cancer
IS - 10
ER -