A discrete choice experiment of preferences for genetic counselling among Jewish women seeking cancer genetics services

S. Peacock, C. Apicella, L. Andrews, K. Tucker, A. Bankier, M. B. Daly, J. L. Hopper

Research output: Contribution to journalArticlepeer-review

16 Scopus citations

Abstract

To determine which aspects of breast cancer genetic counselling are important to Ashkenazi Jewish women, a discrete choice experiment was conducted. Participants consisted of 339 Australian Ashkenazi Jewish women who provided a blood sample for research used to test for Ashkenazi Jewish ancestral mutations in the genes BRCA1 and BRCA2, and were offered their genetic test result through a cancer genetics service. Main outcome measures were women's preferences for, and trade-offs between, the genetic counselling aspects of providing cancer, gene, and risk information (information); giving advice about cancer surveillance (surveillance); preparing for genetic testing (preparation); and, assistance with decision-making (direction). Respondents most valued information, about twice as much as advice about surveillance, four times as much as preparation for testing, and nine times as much as assistance with decision-making, which was least valued. Women's preferences were consistent with the major goals of genetic counselling, which include providing information and surveillance advice, and avoiding direction by facilitating autonomous decision-making. There were differences between the women in which aspects they most favoured, suggesting that counselling that elicits and responds to clients' preferences is more likely to meet clients' needs.

Original languageEnglish
Pages (from-to)1448-1453
Number of pages6
JournalBritish Journal of Cancer
Volume95
Issue number10
DOIs
StatePublished - Nov 20 2006

Keywords

  • Ashkenazi
  • BRCA1 and BRCA2
  • Breast cancer
  • Client preferences
  • Discrete choice experiment
  • Genetic counselling

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